International Rare Disease Support Network
A community providing more than a 1000 different links to support groups for the people of all nations.
http://www.raredisorders.com
NORD: Degos Disease
Sample report, plus links to organisations. [Fee required for full report.]
http://www.rarediseases.org/search/rdbdetail_abstract.html?d...
Agnosia
Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/health_and_medical/disorders/agnosi...
Online Mendelian Inheritance in Man - Progeria
Progeria medical database resource for textual information, pictures, and reference information.
http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670
E-Medicine: Moyamoya Disease
Introduction, clinical features, differentials, work up, treatments, medication and follow up.
http://www.emedicine.com/neuro/topic616.htm
Pemphigus
Background information, traditional treatments and natural medicine, plus the author's personal account.
http://www.uoregon.edu/~sshapiro/Pemphigus/TableOfContents.h...
Cystinosis Foundation
Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
http://www.cystinosisfoundation.org
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